Wednesday, July 28, 2010
My story
Well i have had CF all my life thats obvious but i actually didnt find out until i was 17 when i got real sick. i had been sick all my life with phnuemonia, sinus problems, anything u name it i had it so many times, but the Drs never really looked into anything. My sister was the same way and she was actually misdiagnosed with COPD and had been asking for a sweat test to be done and no1 would do it. Then a new dr finally came to the practice and said yes to doing a sweat test. So at 21 she found out she had CF and that lead them to do a sweat test on me and BAM i find out i had Cystic Fibrosis. Since then everything has been so up and down. Im in the hospital more then im at home. Ive also got many GI issues, GERD, Colitis, Gastric Paresis and had to have my Gall Bladder removed in 08. Ive been stuck with MRSA which is really bringing me down. Ive also got CF related diabetes. Ive had lots of issues with veins blowing and being to weak. so ive had my share of picc lines and mid lines. i got my first port when i was 17 and that 1 lasted me about 4 years. i got my second port in 08. to me the port is the best invention ever!!
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